Resources For Women With Chronic Fatigue Syndrome (In the Usa)

I would like a list of organizations, internet websites, and/or chat

support groups focused on helping women with Chronic Fatigue Syndrome

(CFS). As much information on currently active sites and

organizations are appreciated.



One thought on “Resources For Women With Chronic Fatigue Syndrome (In the Usa)

  1. Hello,

    Thanks for asking your question. You asked the following:

    “I would like a list of organizations, internet websites, and/or chat

    support groups focused on helping women with Chronic Fatigue Syndrome

    (CFS). As much information on currently active sites and

    organizations are appreciated.”

    Here are some links to relevant CFS websites, organizations, and

    support groups.

    Immunesupport.com:

    “World’s largest fibromyalgia and chronic fatigue syndrome site.”

    http://www.immunesupport.com/

    and

    http://www.chronicfatiguesupport.com/

    Pro Health's CFS (chronic fatigue syndrome) & FM (fibromyalgia)

    Message Board:

    http://www.immunesupport.com/chat/forums/index.cfm?b=FM

    Support group listings (for CFS and fibromyalgia):

    http://www.immunesupport.com/supportgroups/

    EZBoard Chronic fatigue syndrome and fibromyalgia discussion group:

    http://pub66.ezboard.com/bfibromyalgiaandchronicfatiguesyndrome

    CDC – Chronic fatigue syndrome:

    http://www.cdc.gov/ncidod/diseases/cfs/support/index.htm

    CDC – Chronic fatigue syndrome support groups within the USA:

    http://www.cdc.gov/ncidod/diseases/cfs/support/supus.htm

    CDC – Chronic fatigue syndrome support groups outside the USA:

    http://www.cdc.gov/ncidod/diseases/cfs/support/supout.htm

    CDC – How to select a support group for CFS:

    http://www.cdc.gov/ncidod/diseases/cfs/support/index.htm#Select

    CFIDS Association of America:

    “Chronic fatigue and immune dysfunction syndrome (CFIDS, also known as

    chronic fatigue syndrome, CFS, myalgic encephalomyelitis, ME and by

    many other names) is a complex and debilitating chronic illness that

    affects the brain and multiple body systems. On this portion of our

    Web site you can find detailed information about CFIDS, its symptoms,

    diagnosis, treatment, important research findings, and how it affects

    the lives of those who live with it everyday.”

    http://www.cfids.org/

    Chronic Syndrome Support Association:

    “The Chronic Syndrome Support Association, Inc., is a 501(c)3

    non-profit corporation. It was founded in order to educate the

    general population and health-care professionals who lack current

    knowledge of the research being done, and potential research that

    needs to be done, on these serious, yet invisible, Chronic

    Immunological and Neurological Disorders (CIND), which include

    Fibromyalgia Syndrome (FMS), Gulf War Syndrome (GWS), Multiple

    Chemical Sensitivities Syndrome (MCS), Myalgic Encephalomyelitis (ME,

    the term used in most of the world) / Chronic Fatigue Syndrome (CFS,

    the term used in the United States), Chronic Myofascial Pain (CMP),

    Post-Polio Syndrome (PPS) and related illnesses. It is our goal to

    promote awareness of these illnesses, and in the process we hope to

    contribute to the growing body of knowledge about them.”

    http://www.cssa-inc.org/

    Co-Cure.org:

    “The name "Co-Cure" stands for "Co-operate and Communicate for a

    Cure." The mailing list has been established with the goal of

    furthering co-operative efforts towards finding the cure for the

    illness(es) commonly referred to as Chronic Fatigue Syndrome (CFS) and

    Fibromyalgia (FM).”

    http://www.co-cure.org/

    Patient handout on CFS from Familydoctor.org:

    http://familydoctor.org/handouts/031.html

    They also list the following:

    National Chronic Fatigue Syndrome and Fibromyalgia Association

    P.O. Box 18426

    Kansas City, MO 64133

    816-313-2000 (24-hour number)

    Yahoo Health – List of CFS sites:

    http://dir.yahoo.com/Health/Diseases_and_Conditions/Chronic_Fatigue_Syndrome/

    Noah Health – List of CFS sites:

    http://www.noah-health.org/english/illness/neuro/cfs.html

    AACFS:

    “The American Association for Chronic Fatigue Syndrome (AACFS) is a

    non-profit organization of research scientists, physicians, licensed

    medical healthcare professionals, and other individuals and

    institutions interested in promoting the stimulation, coordination,

    and exchange of ideas for CFS research and patient care as well as

    periodic reviews of current clinical, research and treatment ideas on

    CFS for the benefit of CFS patients and others.”

    http://www.aacfs.org/

    Medline Plus – Chronic fatigue syndrome:

    http://www.nlm.nih.gov/medlineplus/chronicfatiguesyndrome.html

    New Jersey Chronic Fatigue and Fibromyalgia Center:

    http://www.umdnj.edu/cfsweb/CFS/cfshome.html

    Chronic Fatigue Syndrome Electronic Newsletter:

    http://www.cfs-news.org/cfs-news.htm

    I hope that this provides a good starting point for your Chronic

    Fatigue Syndrome issues.

    Please use any answer clarification before rating this answer. I will

    be happy to explain or expand on any issue you may have.

    Thanks,

    Kevin, M.D.

    Search strategy (using FAST, Google, Inktomi and Teoma via Hotbot.com)

    Chronic fatigue syndrome support

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